Palliative Care Week 2021 - Events

Palliative Care Week will take place from 12 to 18 September 2021. If you are planning an event to coincide with Palliative Care Week or would like to get involved in other ways please contact Yvonne McCahill at All Ireland Institute of Hospice and Palliative Care at ymccahill@aiihpc.org

‘Supporting people with an intellectual disability at end-of-life: Making the care conversation meaningful’
Monday 13 September 11.00 – 12.00

Virtual Zoom webinar

The webinar is organised by Trinity Centre for Ageing and Intellectual Disability (TCAID) with support from All Ireland Institute of Hospice and Palliative Care.

The webinar will be chaired by Professor Mary McCarron, Professor of Ageing and Intellectual Disability, Director of the Trinity Centre for Ageing and Intellectual Disability (TCAID) and Executive Director of the National Intellectual Disability Memory Service. The keynote presentation will be delivered by Dr Eilish Burke, Assistant Professor in Ageing and Intellectual Disability, School of Nursing & Midwifery. Trinity College Dublin. There will also be an input on the experience of the using the end-of-life planning tool by Ms. Liz Hunt, RNID and Area Manager, West Roscommon Services, Brothers of Charity Services, Ireland.

The session will also include a panel discussion including panel members Dr Eilish Burke, Ms. Liz Hunt, Lynn Galligan, CNM2, Daughters of Charity and Dr Karen Ryan, Consultant in Palliative Medicine, St Francis Hospice

Attendees will have the opportunity to submit questions for the panel using the chat function.

Link to Register(Link)

Launch of Mid-West Palliative Care Strategy (2021 – 2025) ‘All services working together for persons with life limiting conditions’ 
Monday 13 September at 3pm
Virtual: Online

Palliative Care: It’s more than you think
Tuesday 14 September, 10.15-11.15
Virtual Zoom webinar

The Department of Nursing and Healthcare, Waterford Institute of Technology is hosting a virtual Zoom webinar to raise awareness of ‘Palliative Care’ in terms of undergraduate Nursing & Healthcare Education and how this can impact students, in caring for people with life-limiting conditions, carers and families. Speakers include, Ms. Geraldine Purcell, Nurse Lecturer, Ms. Ruth Maher, Nurse Lecturer and Ms. Sandra Murnane, Intern Nursing Student Intellectual Disability REGISTER HERE  

Showcasing Palliative Care Research in Northern Ireland
Tuesday 14 September, 12.30 – 14.00
Virtual Zoom webinar

The Palliative Care Research Forum NI aims to encourage collaboration among palliative care researchers and practitioners, in order to improve palliative care research capacity and to promote research initiatives and ideas that are policy relevant, important to service users and stakeholders and which will impact practice and service delivery in Northern Ireland and beyond. At this showcase event, you can expect to hear about recent developments in the area and find out how to get involved! All the talks should be accessible to those with an interest in palliative care including:

  • Welcome, Brief overview of knowledge development in palliative care, Professor George Kernohan, Ulster University and Chair of PCRF NI
  • Impact of the pandemic on out-of-hours community palliative care, Dr Felicity Hasson
  • Family-life when a parent is at end of life from cancer, Dr Cherith Semple, Reader in Clinical Cancer Nursing, Ulster University / South Eastern Health & Social Care Trust
  • ‘What is death literacy, and what level of death literacy is there among the UK public?’, Dr Lisa Graham-Wisener Centre for Improving Health-Related Quality of Life, School of Psychology, Queen’s University Belfast
  • ‘South Eastern health & Social Care Trust Joint Interventional Palliative Care Pain Service (JIPPS)’ – Dr Kiran Kaur, Palliative Medicine Consultant, South Eastern health & Social Care Trust

This event is being supported by All Ireland Institute of Hospice and Palliative Care
Click link to register

Palliative Care Week: It’s more than you think’ Practice Nurse Webinar
Tuesday 14th September 13.00 – 14.00
Virtual Zoom webinar

The Irish Hospice Foundation are holding a webinar for practice nurses which will include:

  • Think Ahead: Having Important Conversations – Becs Lloyd, Public Engagement, Irish Hospice Foundation) – This topic will help you learn how to start difficult and important conversations
  • Grief and Loss: how to talk with and support, someone who is grieving– Breffni McGuiness, National Bereavement Development Specialist, Irish Hospice Foundation

Please click here to register for this event

‘Music Therapy and Bereavement Seminar’ Queen’s University Belfast
Tuesday 14 September 2021, 18.00 – 19.00
Virtual: Zoom

In this public-facing seminar from Queen’s University Belfast (QUB), Dr Lisa Graham-Wisener (Lecturer of Health Psychology, QUB), Dr Tracey McConnell (Marie Curie Senior Research Fellow, QUB) and colleagues will introduce the role of music therapy in providing bereavement support. The session will explain what music therapy is, the potential value of music therapy in supporting individuals pre and post-bereavement, and then will go on to describe a current research project (‘MusiCARER’) which aims to develop the evidence base for using music therapy as a bereavement support intervention. There will be opportunities for questions and discussion. The session is being supported by AIIHPC.

For further information on the speakers and to register (Link)

Palliative Care Update, Royal College of GPs in Northern Ireland
Tuesday 14 September, 19.00 – 20.30
Virtual Zoom webinar

The Royal College of GPs in Northern Ireland is holding a Palliative Care webinar on the evening of Tuesday 14 September. The event will be facilitated by Dr Matthew Dore, Palliative Care Consultant at Northern Ireland Hospice and will include discussion on Advanced Care Planning and an introduction to normative ethics. There will also be an opportunity for a Q&A. Some of the content may be Northern Ireland focussed, however all GPs UK wide are invited to join if interested.

Certificates of completion will be distributed to delegates as proof of CPD learning and there will be a small charge for tickets 

For further information and to register (Link)

Supporting Staff Health & Wellbeing ‘Building resilience and developing coping mechanisms for staff working in End of Life Care’
Wednesday 15 September 14.30 – 16.00
Webinar via Zoom: Organised by Nursing Homes Ireland and Irish Hospice Foundation

The webinar is hosted by Nursing Homes Ireland and LHP Skillnet with the support of the Irish Hospice Foundation.  “Supporting Staff Health & Wellbeing – Building resilience and developing coping mechanisms for staff working in End of Life Care” will be presented by Ms Kate Steele and Ms Joanne Brennan, Irish Hospice Foundation. This webinar is accredited with 1.5 NMBI CEUs. This aims to be an interactive webinar where attendees will be asked to participate in polls. As a result, use of menti.com will be required on the day and delegates are asked to print this handout and bring it with you to the webinar.

Registration: (Link)

Integrating early palliative care for patients with cancer: The evidence and the challenges”
Wednesday, 15th September 15.00 – 16.00
Virtual – Zoom Webinar

The European Association of Palliative Care is partnering with All Ireland Institute of Hospice and Palliative Care to deliver a webinar in which Professor Bruera will discuss the evidence supporting early supportive and palliative care access for patients with cancer. The presentation will discuss the structures needed, including the importance of supportive care outpatient as compared to “embedded” clinics, the processes that should take place in these encounters, and possible outcomes of integration and culture change in institutions. Some of the unanswered questions and possible areas of future research will also be presented. For further information on the webinar please see the EAPC’s blog article (Link)

Professor Eduardo Bruera, MD, FT McGraw Chair in the Treatment of Cancer, Department of Palliative, Rehabilitation, & Integrative Medicine, UT MD Anderson Cancer Center, Houston, USA, for further information here.

Please Register for the webinar here.  

Invitation to attend online webinar ‘‘Hospital Clinical Nurse Specialist’s in Specialist Palliative Care – ‘They’re more than you think’
Thursday 16 September at 10am
Virtual: Zoom Webinar

The Nursing Team of Regional Specialist Palliative Care Services Louth, Meath, Cavan, Monaghan invite you to join us on Thursday 16th September from 10-11am for a Webinar Hospital Clinical Nurse Specialist’s in Specialist Palliative Care – ‘They’re more than you think’. The webinar is hosted by All Ireland Institute of Hospice and Palliative Care (AIIHPC).

In keeping with the theme for Palliative Care Week September 12-18th ‘Palliative Care, It’s more than you think’, the purpose of the webinar is to create a space to rethink the role of the Hospital Clinical Nurse Specialist in Specialist Palliative Care and to start a conversation on how we overcome the challenge of role ambiguity to realise the effectiveness and impact this role has on patient outcomes and experience. Palliative Care Week is about raising awareness of palliative care and we want to raise awareness and shine the light on this important and integral role within the Acute Hospital setting.

The target audience for the webinar is health and social care professionals with an interest in palliative care. Please feel free to circulate details of the webinar to any colleagues or networks who you feel may be interested in attending

To register, please follow this (Link) .  The webinar will be held in zoom. If you have any difficulties with registering, please contact info@aiihpc.org

Lunch and learn: End of life care for people experiencing homelessness
Thursday 16 September 2021, 12:30-13:15
Virtual: Microsoft Teams

Many people experiencing homelessness in the UK are living with complex health needs and have a significantly reduced life expectancy. They are three times more likely to report a chronic health condition than those in stable housing, and there is evidence of increased prevalence of cancer, accelerated ageing and earlier onset of cardiovascular disease.

Despite this, people experiencing homelessness often have poor access to health and social care services, including specific barriers to palliative and end of life care.

To mark Palliative Care Week 2021, Marie Curie will host a short webinar to explore these crucial issues with Dr Briony Hudson – Senior Research Manager at Marie Curie and a leading expert on palliative care for people experiencing homelessness in the UK.

Building on her extensive research in this area in England, Dr Hudson will examine the end of life needs and barriers to care for the homeless population, followed by a Q&A session with the audience.

To register for the event (Link)

‘Palliative Care: What is it actually’ Dufferin Lecture, Queen’s University Belfast
Thursday 16 September 2021, 14:00-15:15
Virtual: Zoom

Keynote speaker Prof Sam Ahmedzai.

Prof Sam Ahmedzai is Emeritus Professor in the Medical School at the University of Sheffield, with over 30 years’ experience of being a consultant physician in palliative medicine and supportive care.

This lecture will explore the history of the development of palliative care, including the various interpretations and misconceptions of its terminology. Prof Ahmedzai will discuss what modern day palliative care has to offer in the UK context, ranging from exciting basic biomedical science mechanisms of symptom expression and management, to present day provision of delivering compassionate holistic coverage across our countries effectively and equitably. 

To register please click here https://forms.office.com/r/CD4kVVUFe8 or email minchen.lie@qub.ac.uk  (link to flyer)

The Heart of Living and Dying for staff members within Northern Health & Social Care Trust
Thursday 16 September 2021
Virtual: Zoom

This evidence-based workshop is a gentle, supported informal conversation about what matters to people in their living and dying. It encourages people who are well, to think forward and explore their goals, hopes, concerns and fears about that time in life when, for whatever reason, dying is brought into sharper focus.

Workshop – ‘Nuts and bolts of how healthcare teams can support families when a mum or dad of dependent children is at end of life with cancer’
Friday 17 September, 9.30am – 1.00pm

Location: Cancer Fund for Children, Daisy Lodge, 124a Bryansford Road, Newcastle, Co. Down, BT33 0PP

Register using Eventbrite link https://cancerfundforchildren-healthcare-event.eventbrite.co.uk (NB: places are limited to 50 delegates)

Organised by Cancer Fund for Children in conjunction with Institute of Nursing and Health Research, Ulster University

 This workshop will focus on research findings from the ‘Family-centred cancer care’ programme of work led by a team of researchers at the Institute of Nursing and Health Research, Ulster University, who have recently been studying the challenges and support needs of families when a parent of dependent children is at end of life with cancer.

Delegates will not only learn about the role of health and social care professionals in supporting parents at end of life but will find out how this research has informed the development of a ‘Top Tips’ resource for healthcare teams (produced in collaboration with Kings College London) and a communication framework for supporting end of life conversations between professionals and parents.

Link to Programme

‘Arts and Minds: Wellbeing in Kidney Disease’ Palliative Care Research Network (PCRN)Webinar
Friday 17 September 2021, 10.00 – 11.00
Virtual: Zoom

This webinar will explore the impact of a Renal Arts Group on wellbeing and quality of life of people with end-stage kidney disease. The Renal Arts Group at Queen’s University Belfast is a collaboration between patients, carers, clinicians, academics and artists to develop a programme of research with the ultimate aim of improving the physical and psychological quality of life of those living with kidney disease. The webinar will share some of the successes of RAG including funding from the Economic and Social Research Council Rapid Response for COVID Recovery and Re-Imagining a Post-lockdown World Account, to develop a series of online arts-based activities to provide mental health and wellbeing support for patients with kidney disease who faced an extended, lonely period of self-isolation

The webinar will be delivered by Dr Helen Noble, Reader, School of Nursing and Midwifery, Queen’s University Belfast. Helen has made a substantial contribution to improving the care offered to patients with end-stage kidney disease approaching the end of life, evidenced by her many publications in leading international journals and leadership of several research studies including a successful multi-institutional study funded by NIHR. Dr Noble has a sustained record of leading, and managing to successful completion, a coherent programme of research.
For further details of Dr Noble’s biography, please see (Link) To register (Link)

‘Palliative Care Care in Nursing Homes’
Friday 17 September 11am – 12 noon
Webinar via Zoom: Organised by Nursing Homes Ireland
The webinar will be led by Dr Paul Gregan who is a GP principal in Deansgrange Co. Dublin and Specialist Consultant in Palliative Care Medicine in Blackrock Hospice and in St Michael’s Dun Laoghaire and Ms Una Molloy, Community Palliative Care Nurse, St Francis Hospice 
Registration: Link

‘Public engagement and consultation with advance care planning’ workshop for members of the public 
Friday 17 September 2021, 14:30-16:00
Virtual: Zoom
Ulster University, supported by the Public Health Agency, Patient and Client Council, All Ireland Institute of Hospice and Palliative Care, and Palliative Care Research Forum Northern Ireland, are hosting a workshop to engage members of the public with advance care planning. The workshop will provide an opportunity to share information on advance care planning based on recent research and provide space to think about what ACP means on a personal level. The workshop will also create an opportunity to engage in policy consultations. (Link to further information  / Link to registration page )

The Heart of Living and Dying for Occupational Therapists within Northern Health & Social Care Trust
Wednesday 22 September 2021
Virtual: Zoom

This evidence-based workshop is a gentle, supported informal conversation about what matters to people in their living and dying. It encourages people who are well, to think forward and explore their goals, hopes, concerns and fears about that time in life when, for whatever reason, dying is brought into sharper focus.

 

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